Congenital Heart Disease in Children and Adults (Congenital audit)

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About congenital heart defects

Congenital heart disease (CHD) refers to any malformation or disease of the heart present from birth and includes structural defects, congenital arrhythmias, and some cardiomyopathies. About 1% of babies are born with a heart or circulatory condition, usually a congenital heart malformation.

Congenital heart problems range from simple to complex. Some heart problems can be watched and managed with medicines, while others will require heart surgery or transcatheter intervention (keyhole techniques) – sometimes as soon as in the first few hours after birth. Survival and medical care for babies with critical CHD has dramatically improved over the past few years due to advances in diagnostic and treatment techniques including identifying cardiac malformations before birth referred to as antenatal diagnosis.

National Congenital Heart Disease Audit (NCHDA)

NCHDA aim’s to provide key quality improvements in outcomes and service delivery for infants, children, adolescents and adults undergoing interventions for paediatric and congenital heart disease, as detailed in the main NCAP aggregate report. The background and history of the NCHDA, including methodology, analytical scope, validation and risk adjustment, is detailed here

NCHDA Summary Report 2022

The audit collects and analyses data from all centres undertaking congenital cardiac surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2018 to 2021.

Download NCHDA Summary Report 2022

There is also a Key Messages document and Line of Sight table.

Methodology 

Quality improvement metrics for NCHDA

NICOR uses quality improvement (QI) metrics in their reports to measure processes and describe outcomes against achievable standards or benchmarks. The NCHDA QI metrics relate to the themes of patient outcomes, safety and clinical effectiveness:

Data Quality Indicator (DQI) including reports for each hospital 2020-2021

Data Quality Indicator score gives an indication of the quality of the data submitted by each centre against the expected NCHDA Standard.

NCHDA DQI background

ACH Site Validation Report 2021

BCH Site Validation Report 2021

BHL Site Validation Report 2021

BRC Site Validation  Report 2021

Dublin OLS Site Validation Report 2021

FRE Site Validation Report 2021

GOS Site Validation Report 2021

GRL Site Validation Report 2021

GUY Site Validation Report 2021

LGI Site Validation Report 2021

NHB Site Validation Report 2021

QEB Site Validation Report 2021

RVB Site Validation 2021

SBH Site Validation Report 2021

SGH Site Validation Report 2021

CHD Procedural Activity 2018-21

Antenatal Diagnosis including maps 2018-21

Specific Procedure Summary 2018-21

Specific Procedure Funnel Plots 2018-21

Activity and 30 Day Outcomes by Age Group - All Procedures 2019-20

Supplementary Documents

Definition of important early morbidities related to paediatric cardiac surgery

PRAiS_2018_21

Contact details:

Sarah Ajayi,  National Congenital Heart Disease Audit Project Manager

Shenaka Singarayer, National Congenital Heart Disease Audit Project Coordinator

Lin Denne RN, National Congenital Heart Disease Audit Clinical Data Auditor

Datasets and user guides

Current National Congenital Heart Disease Audit dataset (revised March 20)

Current data manual (revised March 20)

National Cardiac Audit Programme (NCAP) Datasets page

Older Reports

National Congenital Heart Disease Audit 2017-20 Summary Report 2021

NCHDA Summary Report 2021

The audit collects and analyses data from all centres undertaking congenital cardiac surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2017 to 2020.

Download NCHDA Summary Report 2021

There is also a Key Messages document and Line of Sight table.

Methodology

Data Quality Indicator (DQI) including reports for each hospital

Data Quality Indicator score gives an indication of the quality of the data submitted by each centre against the expected NCHDA Standard.

NCHDA DQI background

ACH NCHDA Report 2020

BRC NCHDA Report 2020

GRL NCHDA Report 2020

LGI NCHDA Report 2020

LHCH NCHDA Report 2020

NCHDA Validation Report FRE 2020

NCHDA GJNH Report 2020

NCHDA Report GOS 2020 docx

NCHDA Report RVB 2020

NCHDA Validation Report 2020

NCHDA Validation Report BCH 2020

NCHDA Validation Report QEB 2020

NHB NCHDA Validation Report 2020

OLS NCHDA Report 2020

RHS NCHDA Report 2020

SBH NCHDA Validation Report 2020

SGH NHCDA Report 2020

CHD Procedural Activity

Centres undertaking major congenital cardiac procedures 2017 -20 280621…_

NCHDA 10 Years activity summary table

This metric looks at procedural activity, both surgical and catheter-based, by age group within each centre and consultant operator activity.

Antenatal Diagnosis including maps

Trend in antenatal detection rates of all infants requiring a procedure with a successful antenatal diagnosis

Antenatal_Diagnosis_4 lesions and overall diagnosis 10 years 280621

Antenatal maps

Antenatal Diagnosis 2019-20 Map

Antenatal Diagnosis 2017-20 Map

Specific Procedure Summary 2017-20

Specific Procedure Summary 2017-20

Specific Procedure Summary 2019-20

Specific Procedure Funnel Plots 2017-20

Electrophysiology

Electrophysiology (all) 2017-20

Surgical

Surgical (all) 2017-20

Transcatheter

Transcatheter (all) 2017-20

Activity and 30 Day Outcomes by Age Group – All Procedures 2019-20

Activity and 30 Day Outcomes by Age Group – All Procedures 2019-20

 

National Congenital Heart Disease Audit 2016-19 Summary Report 2020

NCHDA Summary Report 2020 

Specific Procedure Summary 2016-19

Specific Procedure Summary 2016-19

Specific Procedure Funnel Plots

Electrophysiology

Electrophysiology _ arrhythmia_surgical _ ACHD _survival30d

Surgical

Surgical _ aortic_root_replacement _ ACHD _survival30d

Surgical _ mapca_unifocalisation _ Paediatric _survival30d

Surgical _ transposition_vsd _ Paediatric _survival30d

Transcatheter

Transcatheter _ asd_transluminal _ ACHD _survival30d

Transcatheter _ rvot_stent _ ACHD _survival30d

Antenatal Diagnosis

Antenatal Diagnosis 2018-19 Map

Antenatal Diagnosis 2016-19 Map

Activity and 30-Day Outcomes by Age Group – All Procedures

https://www.nicor.org.uk/wp-content/uploads/2020/12/Activity-and-30-Day-Outcomes-by-Age-Group-–-All-Procedures.xlsx

Centre level risk-adjusted, and procedure-stratified, 30-day mortality following aggregated and specific CHD procedures in children and adults (16 years and over), using three year rolling cohorts of patients link

Measures the incidence of seven complications (also termed morbidities) following paediatric cardiac surgery to establish best practice at each centre link

2018/19 data quality reports for each hospital

National Congenital Heart Disease Audit 2015-18 Summary Report 2018

National Congenital Heart Disease Audit 2014-17 Summary Report 2017

Reports published before 2017

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