Congenital Heart Disease in Children and Adults (Congenital audit)

About congenital heart defects

Congenital heart disease (CHD) refers to any malformation or disease of the heart present from birth and includes structural defects, congenital arrhythmias, and some cardiomyopathies. About 1% of babies are born with a heart or circulatory condition, usually a congenital heart malformation.

Congenital heart problems range from simple to complex. Some heart problems can be watched and managed with medicines, while others will require heart surgery or transcatheter intervention (keyhole techniques) – sometimes as soon as in the first few hours after birth. Survival and medical care for babies with critical CHD has dramatically improved over the past few years due to advances in diagnostic and treatment techniques including identifying cardiac malformations before birth referred to as antenatal diagnosis.

National Congenital Heart Disease Audit (NCHDA)

NCHDA aim’s to provide key quality improvements in outcomes and service delivery for infants, children, adolescents and adults undergoing interventions for paediatric and congenital heart disease, as detailed in the main NCAP aggregate report. The background and history of the NCHDA, including methodology, analytical scope, validation and risk adjustment, is detailed here

NCHDA Summary Report 2021

The audit collects and analyses data from all centres undertaking congenital cardiac surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2017 to 2020.

Download NCHDA Summary Report 2021

There is also a Key Messages document and Line of Sight table.

Methodology 

Quality improvement metrics for NCHDA

NICOR uses quality improvement (QI) metrics in their reports to measure processes and describe outcomes against achievable standards or benchmarks. The NCHDA QI metrics relate to the themes of patient outcomes, safety and clinical effectiveness:

Supplementary Documents

Definition of important early morbidities related to paediatric cardiac surgery

PRAiS_2017_20

Contact details:

Sarah Ajayi,  National Congenital Heart Disease Audit Project Manager

Shenaka Singarayer, National Congenital Heart Disease Audit Project Coordinator

Lin Denne RN, National Congenital Heart Disease Audit Clinical Data Auditor

Datasets and user guides

Current National Congenital Heart Disease Audit dataset (revised March 20)

Current data manual (revised March 20)

National Cardiac Audit Programme (NCAP) Datasets page

Older Reports

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