Congenital heart disease (CHD) refers to any malformation or disease of the heart present from birth and includes structural defects, congenital arrhythmias, and some cardiomyopathies. About 1% of babies are born with a heart or circulatory condition, usually a congenital heart malformation.
Congenital heart problems range from simple to complex. Some heart problems can be watched and managed with medicines, while others will require heart surgery or transcatheter intervention (keyhole techniques) – sometimes as soon as in the first few hours after birth. Survival and medical care for babies with critical CHD has dramatically improved over the past few years due to advances in diagnostic and treatment techniques including identifying cardiac malformations before birth referred to as antenatal diagnosis.
NCHDA aim’s to provide key quality improvements in outcomes and service delivery for infants, children, adolescents and adults undergoing interventions for paediatric and congenital heart disease, as detailed in the main NCAP aggregate report. The background and history of the NCHDA, including methodology, analytical scope, validation and risk adjustment, is detailed here
The audit collects and analyses data from all centres undertaking congenital cardiac surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2017 to 2020.
Download NCHDA Summary Report 2021
There is also a Key Messages document and Line of Sight table.
NICOR uses quality improvement (QI) metrics in their reports to measure processes and describe outcomes against achievable standards or benchmarks. The NCHDA QI metrics relate to the themes of patient outcomes, safety and clinical effectiveness:
Data Quality Indicator score gives an indication of the quality of the data submitted by each centre against the expected NCHDA Standard.
NCHDA Validation Report FRE 2020
NCHDA Validation Report BCH 2020
NCHDA Validation Report QEB 2020
NHB NCHDA Validation Report 2020
Centres undertaking major congenital cardiac procedures 2017 -20 280621…_
NCHDA 10 Years activity summary table
This metric looks at procedural activity, both surgical and catheter-based, by age group within each centre and consultant operator activity.
Trend in antenatal detection rates of all infants requiring a procedure with a successful antenatal diagnosis
Antenatal_Diagnosis_4 lesions and overall diagnosis 10 years 280621
Definition of important early morbidities related to paediatric cardiac surgery
Sarah Ajayi, National Congenital Heart Disease Audit Project Manager
Shenaka Singarayer, National Congenital Heart Disease Audit Project Coordinator
Lin Denne RN, National Congenital Heart Disease Audit Clinical Data Auditor
Current National Congenital Heart Disease Audit dataset (revised March 20)
Current data manual (revised March 20)
National Cardiac Audit Programme (NCAP) Datasets page
Specific Procedure Summary 2016-19
Specific Procedure Summary 2016-19
Specific Procedure Funnel Plots
Electrophysiology
Electrophysiology _ arrhythmia_surgical _ ACHD _survival30d
Surgical
Surgical _ aortic_root_replacement _ ACHD _survival30d
Surgical _ mapca_unifocalisation _ Paediatric _survival30d
Surgical _ transposition_vsd _ Paediatric _survival30d
Transcatheter
Transcatheter _ asd_transluminal _ ACHD _survival30d
Transcatheter _ rvot_stent _ ACHD _survival30d
Antenatal Diagnosis
Antenatal Diagnosis 2018-19 Map
Antenatal Diagnosis 2016-19 Map
Activity and 30-Day Outcomes by Age Group – All Procedures
https://www.nicor.org.uk/wp-content/uploads/2020/12/Activity-and-30-Day-Outcomes-by-Age-Group-–-All-Procedures.xlsx
Centre level risk-adjusted, and procedure-stratified, 30-day mortality following aggregated and specific CHD procedures in children and adults (16 years and over), using three year rolling cohorts of patients link
Measures the incidence of seven complications (also termed morbidities) following paediatric cardiac surgery to establish best practice at each centre link
