Data Quality Indicator score gives an indication of the quality of the data submitted by each centre against the expected NCHDA Standard.
Congenital Heart Disease in Children and Adults (Congenital audit)
About congenital heart defects
Congenital heart disease (CHD) refers to any malformation or disease of the heart present from birth and includes structural defects, congenital arrhythmias, and some cardiomyopathies. About 1% of babies are born with a heart or circulatory condition, usually a congenital heart malformation.
Congenital heart problems range from simple to complex. Some heart problems can be watched and managed with medicines, while others will require heart surgery or transcatheter intervention (keyhole techniques) – sometimes as soon as in the first few hours after birth. Survival and medical care for babies with critical CHD has dramatically improved over the past few years due to advances in diagnostic and treatment techniques including identifying cardiac malformations before birth referred to as antenatal diagnosis.
National Congenital Heart Disease Audit (NCHDA)
NCHDA aim’s to provide key quality improvements in outcomes and service delivery for infants, children, adolescents and adults undergoing interventions for paediatric and congenital heart disease, as detailed in the main NCAP aggregate report. The background and history of the NCHDA, including methodology, analytical scope, validation and risk adjustment, is detailed here
NCHDA Summary Report 2021
The audit collects and analyses data from all centres undertaking congenital cardiac surgery, interventional procedures (including electrophysiology) and antenatal detection in the UK and Republic of Ireland between 2017 to 2020.
Quality improvement metrics for NCHDA
NICOR uses quality improvement (QI) metrics in their reports to measure processes and describe outcomes against achievable standards or benchmarks. The NCHDA QI metrics relate to the themes of patient outcomes, safety and clinical effectiveness:
Data Quality Indicatory (DQI) including reports for each hospital
CHD Procedural Activity
This metric looks at procedural activity, both surgical and catheter-based, by age group within each centre and consultant operator activity.
Antenatal Diagnosis including maps
Trend in antenatal detection rates of all infants requiring a procedure with a successful antenatal diagnosis
Specific Procedure Summary 2017-20
Specific Procedure Funnel Plots 2017-20
Activity and 30 Day Outcomes by Age Group - All Procedures 2019-20
Sarah Ajayi, National Congenital Heart Disease Audit Project Manager
Shenaka Singarayer, National Congenital Heart Disease Audit Project Coordinator
Lin Denne RN, National Congenital Heart Disease Audit Clinical Data Auditor
Datasets and user guides
National Congenital Heart Disease Audit 2016-19 Summary Report (published 2020)
Specific Procedure Summary 2016-19
Specific Procedure Funnel Plots
Activity and 30-Day Outcomes by Age Group – All Procedures
Centre level risk-adjusted, and procedure-stratified, 30-day mortality following aggregated and specific CHD procedures in children and adults (16 years and over), using three year rolling cohorts of patients link
Measures the incidence of seven complications (also termed morbidities) following paediatric cardiac surgery to establish best practice at each centre link