Category Archive: General

NICOR has transferred to NHS Arden and GEM

From today, Friday 24 June 2022, the hosting of all NICOR clinical audits & registries is being transferred from Barts Health NHS Trust to NHS Arden & GEM Commissioning Support Unit (Arden & GEM).

As mentioned in our earlier communication, this change will not have any impact on users or professional groups, who will continue to access NICOR in the usual way, and no action by them is necessary.

The transfer of the system has been completed seamlessly in the background, meaning the quality-of-service users receive from NICOR will not be affected. This change has been commissioned by NHS England to improve the alignment of all NICOR clinical audits & registries and ensure their subsequent alignment with the objectives set out in the NHS Long Term Plan.

For those of you who are not familiar with Arden & GEM, they are part of the NHS and hosted by NHS England. In addition, their Business Intelligence team has a well-established and proven reputation for hosting clinical registries

No service changes are expected during the transfer; and the continued collection and submission of data to support the NICOR clinical audits and registries remains as important as ever.  We will remain in contact with all users and professional groups so that, in the unlikely event of any issues, we can respond immediately.

 Should you have any questions please contact nicor.helpdesk@nhs.net

NICOR publishes National Cardiac Audit Programme (NCAP) Annual Report 2022

National Cardiac Audit Programme Annual Report for 2022  published today (16 June 2022)

The report, called “The Heart in Lockdown” covers the 12 months from 1st April 2020 to 31st March 2021, the first year of the pandemic.
The NHS faced huge challenges during this time. Across cardiovascular services, bed capacity and staff were redeployed to support COVID-19 patients. Out-patient services were seriously disrupted. There were high levels of illness across the workforce. Staff had to take special measures to protect patients as well as themselves.

Maintaining clinical care for patients has been the top priority of the cardiovascular community. Alongside this, great efforts were made to maintain a flow of audit data to the NICOR’s national cardiac audit programme. This has enabled the analytical work needed to track the impact of the pandemic on cardiovascular services and patients.

With our academic partners, we summarised the early effects on services in our 2020 COVID report, ‘Rapid cardiovascular data: we need it now (and in the future)’ along with the updates that followed. This NCAP report, with a more comprehensive dataset for 2020/21, now looks at the overall impact of the pandemic in that first year. The NCAP analyses combined with inputs from our clinical colleagues, patients, and carers, have allowed us to summarise experiences during that time as well as highlighting lessons to be learned for service recovery and quality improvement.

A big thank you to all our colleagues and stakeholders for their continued support and contribution.  Particularly our clinical colleagues, their supporting audit and clerical teams, and their hospital management teams for ensuring that important data are collected and sent to NICOR. We hope our annual reports put these data into context. In addition to the annual reports, we are incredibly pleased to see an increasing uptake in the use of our new ICT data tools across the country. These allow clinical teams to determine how they are performing on a continuous basis. The data tools also provide a feedback system to help audit teams improve data quality.

Understanding the pressures on hospitals and their clinical teams, we are most grateful for your continuing hard work and contributions to the NCAP.

The Annual Report is accompanied by supporting reports from all the six domains covered by the audit programme and a dedicated Annual Report for Patients, Carers and the Public, which was co-written by NICOR patient representatives Sarah Brown and Richard Corder.

We would welcome your comments, feedback, queries, or ideas for our future reports at nicor.auditenquiries@nhs.net 

Domain Reports

National Adult Cardiac Surgery Audit (NACSA) 2022 Summary Report

National Audit of Percutaneous Coronary Interventions (NAPCI) 2022 Summary Report

National Audit of Cardiac Rhythm Management (NACRM) Devices and Ablation 2022 Summary Report

National Congenital Heart Disease Audit (NCHDA) 2022 Summary Report

National Heart Failure Audit (NHFA) 2022 Summary Report

Myocardial Ischaemia National Audit Project (MINAP) 2022 Summary Report

NICOR hosting moving to NHS Arden & GEM CSU from Barts Health NHS Trust

INFORMATION FOR NICOR USERS AND PROFESSIONAL GROUPS RELATING TO THE CHANGE OF HOSTING NICOR CLINICAL AUDITS & REGISTRIES

On Friday 24 June 2022, the hosting of all NICOR clinical audits & registries will transfer to NHS Arden & GEM CSU (Arden & GEM) from Barts Health NHS Trust.

The change, which is being commissioned by NHS England to improve the alignment of all the NICOR clinical audits & registries and their subsequent alignment with the objectives set out in the NHS Long Term Plan, will be completed seamlessly in the background – meaning the quality-of-service users receive from NICOR will not be affected.

The change will not have any impact on users or professional groups, who will continue to access NICOR in the usual way, with no further action necessary. In addition, the quality of service that patients and carers receive from NICOR will be unaffected.

Whilst, information asset ownership will transfer to NHS England, information asset administration will remain with NICOR, which means on a day-to-day basis, NICOR staff will continue to deliver services as per usual and be invited to TUPE transfer to Arden & GEM.

No service changes are expected during the transfer; and the continued collection and submission of data to support the NICOR clinical audits and registries remains as important as ever. We will remain in contact with all users and professional groups so that, in the unlikely event of any issues, we can respond immediately.

Arden & GEM is part of the NHS and is hosted by NHS England, its Business Intelligence team has a well-established and proven reputation for hosting clinical registries.

NHSE

Sally Cavanagh, Clinical Information Manager, Specialised Services National Business Intelligence and Information Team, NHS England and NHS Improvement said:

This is a fantastic opportunity to improve the alignment of all the NICOR clinical audits & registries and their subsequent alignment with the objectives set out in the NHS Long Term Plan, as we strive to improve patient outcomes.

Arden & GEM

Helen Seth, Director of Business Intelligence and Provider Management at Arden & GEM said:

We are delighted to have been chosen by NHS England to host the NICOR (National Institute for Cardiovascular Outcomes Research) Clinical Audits & Registries and would like to welcome the NICOR Team, to the NHS Arden & GEM family.

This development enhances our position as one of the NHS’ leading providers of hosting clinical registries, and we look forward to the opportunity to exchange knowledge, build on best practice and deliver continuous improvement together.

Professor John Deanfield CBE, NICOR Director said:

NICOR has the largest electronic repository of cardiovascular disease real-world data and has been a major contributor to quality improvement and improved outcomes from cardiovascular disease.   The COVID pandemic really emphasised NICOR’s value in assessing changes in care delivery and supporting the government’s decision making and policy.  We are excited by this move which will facilitate closer working with the NHS to maximise the impact of real world data to the benefit of all of stakeholders including patients, medical professionals and health providers.

National Data Opt Out – extended to 31 July 2022

The deadline for the National Data Opt Out policy has been extended again, to 31 July 2022.  The information on the NHS DIgital page still gives 31 March 2022 as the deadline but this will be updated in the next few days, as of today (29/03/22). We received this communication from the Healthcare Quality Improvement Partnership (HQIP) yesterday:

‘The mandatory implementation of the National Data Opt-Out (NDOO), deadline of 31 March 2022, has been extended until 31 July 2022. We do not intend to extend implementation of the deadline any further.

 As set out in the Operational Policy Guidance, the opt-out applies to the disclosure of confidential patient information for purposes beyond an individual’s direct care across the health and care system in England, unless an exemption has been granted. 

If you have any further questions please contact nationaldataopt-out@nhsx.nhs.uk.

https://www.hqip.org.uk/news/update-on-national-data-opt-out/#.YkM2qefMJPYhttps://digital.nhs.uk/services/national-data-opt-out

2021 ANNUAL REPORT WEBINAR VIDEOS NOW UP ON THE SITE!

If you missed our fantastic 2021 Annual Report webinar “The Way We Were: Lessons for Service Redesign” on Wednesday 24 November, now is your chance to catch it. You can access all the videos on our brand new Youtube channel or via the individual speaker links on our web page.

The report highlights the state of play just as we entered the COVID-19 pandemic. Since then, so much has happened. Many care pathways were disrupted whilst resources were diverted to maintaining or creating new services for emergency and urgent cases. The pandemic continues but in a different form following the vaccination programme. Integrated care systems, hospital and ambulance trusts are collectively dealing with the consequences, and establishing work programmes to deal with current requirements as well as the backlog.

The lessons of the NCAP prior to the pandemic are all highly relevant to the on-going re-design of services. Around 150 people joined us to explore what is shown by the audit data, and what we have learned from this challenging period. There is also a half hour session from Dominique Allwood of UCL Partners on using data and Quality Improvement methods to implement improvement.

NICOR publishes National Cardiac Audit Programme (NCAP) Annual Report 2021

NICOR has today (14 October 2021) published the National Cardiac Audit Programme Annual Report for 2021.

The report, called “The Way We Were: A Pre-Pandemic Stocktake to Help the Recovery” summarises key findings from the National Cardiac Audit Programme (NCAP) based on data collected between 1st April 2019 and 31st March 2020 (or between 2017 and 2020 for those analyses requiring three years’ consecutive data). Trends in data from 2010/11 are provided where appropriate to provide a comprehensive stocktake of progress and continuing challenges from the decade prior to the pandemic. As such, it represents the state of play up to the point we were just entering the national COVID-19 pandemic (the first lockdown occurring on the 23rd March 2020).

The Annual Report is accompanied by supporting reports from all the six domains covered by the audit programme and a dedicated Annual Report for Patients, Carers and the Public, which was co-written by NICOR patient representatives Sarah Brown and Richard Corder.

Domain Reports

National Adult Cardiac Surgery Audit (NACSA) 2021 Summary Report

National Audit of Percutaneous Coronary Interventions (NAPCI) 2021 Summary Report

National Audit of Cardiac Rhythm Management (NACRM) Devices and Ablation 2021 Summary Report

National Congenital Heart Disease Audit (NCHDA) 2021 Summary Report

National Heart Failure Audit (NHFA) 2021 Summary Report

Myocardial Ischaemia National Audit Project (MINAP) 2021 Summary Report

 

National Data Opt Out Policy compliance deadline extended to 31 July 2022

The deadline for the National Data Opt Out policy has been extended again, to 31 July 2022.  The information on the NHS DIgital page still gives 31 March 2022 but this will be updated in the next few days, as of today (29/03/22). We received this communication from the Healthcare Quality Improvement Partnership (HQIP) yesterday:

‘The mandatory implementation of the National Data Opt-Out (NDOO), deadline of 31 March 2022, has been extended until 31 July 2022. We do not intend to extend implementation of the deadline any further.

 As set out in the Operational Policy Guidance, the opt-out applies to the disclosure of confidential patient information for purposes beyond an individual’s direct care across the health and care system in England, unless an exemption has been granted. 

If you have any further questions please contact nationaldataopt-out@nhsx.nhs.uk.

https://www.hqip.org.uk/news/update-on-national-data-opt-out/#.YkM2qefMJPYhttps://digital.nhs.uk/services/national-data-opt-out

 

 

NICOR Director, Professor John Deanfield, honoured with CBE

NICOR’s Director, Professor John Eric Deanfield, was named in the Queen’s Birthday Honours list 2021 this weekend as recipient of the award Commander of the Order of the British Empire (CBE) for “Services to the Prevention and Treatment of Heart Disease”.

John has had a remarkable career and was specifically named as Director of NICOR in the list. In addition to the use of national data for public health purposes, he has majored on the prevention of heart disease and has been an advisor to Public Health England and the government for many years. As a team, we at NICOR congratulate him on this wonderful news,

You can read the full Queen’s Birthday Honours list here:

https://www.gov.uk/government/publications/the-queens-birthday-honours-2021

 

VICORI Cancer/Cardiac data resource profile published

The Virtual Cardio-Oncology Research Initiative (VICORI) programme brings together English national cancer data and six national cardiovascular disease audits to investigate the interplay between cardiovascular disease and cancer.

The VICORI data resource captures adults (aged 18+ years) who were hospitalized for cardiac disease, had a cardiac procedure and/or a cancer diagnosis alongside information on their treatment and outcomes. These data are routinely collected and submitted to health care registries and are linked using a unique health service number.

Detailed data on cancer and cardiac diagnosis, treatment, outcomes, previous and subsequent hospital diagnoses and operations, and mortality are available from 6.2 million cancer diagnoses between 1995 and 2018, and 3.8 million cardiac hospital admissions/procedures between 1999 and 2018.

Access it here: https://academic.oup.com/ije/advance-article/doi/10.1093/ije/dyab082/6293995

The VICORI cohort will be updated on a rolling basis with annual updates from the audits.

  • Interested research collaborators can contact VICORI researchers at [vicori@le.ac.uk].

NICE publishes new Cardiovascular Disease Management Impact Report including NCAP data

The National Institute for Health and Care Excellence (NICE) has published an impact report on cardiovascular disease (CVD) management. This new report, which includes NICOR data from the National Cardiac Audit Programme (NCAP), considers how NICE’s evidence-based guidance contributes to improvements in care of people with CVD.

This is the latest impact report in a series which looks at how NICE’s evidence-based guidance is being used in priority areas of the health and care system. NICE impact reports are based on data from national audits, reports, surveys and indicator frameworks that show the uptake of their guidance and quality statement measures. You can access all the impact reports on the NICE website.

Judith Richardson, NICE’s Acting Director for Health and Social Care, has published a blog about the CVD management impact report in the National Health Executive

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