The application process is explained in the flow diagram provided below. Applicants are asked to read the flow diagram alongside the data sharing policy, before making an application for data by completing and returning both the data application form and the statistical analysis plan. In addition, you should also send a copy of your organisation’s system level security policy. This usually describes the security measures in place to store data.
Please note that ALL applications once approved by the relevant NICOR Research Committee also require an approval from HQIP.
All completed applications should be sent to email@example.com
No charge for data extracts for local audit or service evaluation
NICOR is commissioned to manage national cardiovascular databases for clinical audit. Therefore, NICOR does not charge for data extracts for local clinical audit or service evaluation purposes.
Why NICOR charges for data extracts for research
NICOR does not receive any funding to support research using the national audit data. Thus, NICOR has to recoup the costs of providing data extracts for research purposes. It is important to stress that NICOR is not charging for the data, but charging for the time associated with providing a data extract. The costs indicated in the Table are ‘at cost’ of producing the extract and NICOR does not intend to make any profit from charging for data extracts. Thus, if the PI requests an amendment(s) to the original application/extract resulting in an amended extract having to be prepared by NICOR, this will incur a further charge of £1,000.
NICOR encourages that all data access requests to NICOR for research purposes should have appropriate funding, including the NICOR data access costs. The Health Research Authority has provided some links to potential funding streams, which you may find useful:
Pilot data and feasibility study data requests
NICOR wishes to be as helpful as possible in facilitating research using national cardiovascular clinical audit data. NICOR encourages that requests for pilot data/analysis for grant submissions or to explore the feasibility of a particular question should first be discussed with the appropriate project manager. We aim not to charge for these requests, but if they are particularly complicated or time-consuming a charge may be considered.
Waivers from the charge
NICOR encourages that all data access requests to NICOR for research purposes should have appropriate funding, including the NICOR data access costs. However, NICOR does appreciate that there are important areas of work that need to be done that have not been successful in receiving funding. In these instances, each national audit research group can ‘waive’ the charge on a maximum of three research data access requests per financial year. These can only be on Tier 1b and Tier 2b requests and is dependent on the applicant having submitted but having been unsuccessful, in obtaining grant money.
Exploring options for the future
NICOR is committed to making data extracts for research as accessible as possible and aspires to being able to provide data extracts for research at a reduced, or at no cost, to applicants in the future. We are exploring a number of options for alternative funding to support this.
For access to the data from a single database, complete applications will be reviewed by the audit/registry research/data management group. Access to data from multiple, linked, NICOR databases will be reviewed by the NICOR research executive.
The decision of the review process will be recorded in the NICOR data access application evaluation form. The decision of this group will be communicated to the applicants.