With Immediate Effect, NICOR are no longer able to share derived life status data with any third party
Following discussions between HQIP, the data controller and funder for our National Cardiovascular Clinical Audits, NHS Digital and NICOR we regret to advise you that the NHS Digital position on sharing derived life status data, for some inexplicable reason, has changed. With immediate effect, NICOR are no longer able to share derived life status data with any third party. This has implications for all data access requests that have:
1) been approved by HQIP and NICOR but still to be released and
2) for all new applications.
Until the current situation is resolved we can only process data access requests for data items collected as part of the audit. In terms of life status this is limited to in-hospital deaths as reported by the hospital. Until this issue is resolved, you may contact NHS Digital direct, via the following link, to discuss your requirements for linkage to life status, with NHS digital acting as the trusted third party: http://content.digital.nhs.uk/media/19239/DARS-products-and-services/pdf/DARS_Products_and_services.pdf
NHS Digital will also be able to advise you of the fee that they charge for death data, its linkage and other services that they offer.
If you have submitted a data application request to NICOR would you please advise Anthony Bradley at NICOR by email (firstname.lastname@example.org) regarding what action you would like to take about your application, whether you would like to:
1) put your application on hold until the situation is resolved,
2) revise your application and limit life status to hospital reported deaths or
3) Withdraw your application.
We apologise for any inconvenience and delays this may cause your project. However, although we are working with HQIP and NHS Digital to resolve this issue, this decision is out of our hands and undoubtedly will take some time to resolve.
|Professor John Deanfield||Professor Chris Gale|
|Director of NICOR||Co-Chair, NICOR Research Committee|